Paula,

Usually the 2 to 3 weeks post Tx are the worse for everyone. I didn't have a Peg and I wound up in the hospital in my 2nd week post Tx. Around the 3rd week was when I began to notice I was walking out of that dark tunnel for good. Even then he will have bad days so don't think it's a relaspe. That period of good days and then a bad day lasted for about 2 months but remember we can all react differently.

As far as wieght loss, I lost 30% of my body weight without the Peg but I am now 6 months post Tx and I have regained all but 10 pounds and I don't think I want those back anyway.

Try Carnation Instant Breakfast VHC. It has 560 nutritionally balanced calories in a 8 oz can and helped me tremendiously when getting the most bang for my buck so to speak was important. You don't need a prescription but you order it through your pharmacy, like Walgreens or CVS. Remember to specify VHC and 560 cals.

Like Gary said, be patient. I know that's easier said than done but all of us experienced the same things that he and you are going through now and we were all told the same things we are telling you now. It will get better and better but like in baby steps, not leaps and bounds. One day he will notice an improvement and he will feel like this is it but he may not see another improvement for a week or so. Improvements will come though. Six months ago I wouldn't have thought I would feel the way I do now. I also wished it hadn't taken 6 months but that's just the way we all heal from this barbaric treatment.

And it's OK to complain, we all did.

David, I moved this thread to "After treatment Issues" becuase it was hijackinng Amy's thread. Please respond to it in that topic instead. That includes anyone elso responding to Paula and not Amy.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.