Thanks. I start IMRT and chemo Oct 17 (6-8 wks)for CUP and have saved your blog to read through carefully. It is hard to learn all this information and know what to read first and then what to push for with the doc. Your blog looks very informative with all the good links. The first thing I asked for from the RO I got back an answer something to the effect of don't worry he is an expert and is up on all the latest in the field. But when I asked if I could email them a report I had a question no one there had email??? How can they be up on the latest without access to the internet? You don't need to answer this I'm just rambling bkz of the way I felt put off by the questions I tried to ask about my treatment. I have decided to put my questions in writing and present them to him and ask for a written response so I can study what he has said and have a record of it. Seems like many time I ask a question and I can't remember what the response is later. That's where the library comes in handy. and this forum
Monty Cunningham, metastatic squamous cell carconoma with UP,(re-occuring) & thyroid cancer
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