Hello Joyce Thank you so much for your help. In researching the drug it has 'let me in' to lots of the stories on this site and it is great to read that so many of you are able to help and support each other over this dreadful disease. I am a regular contributor to the UK equivalent 'Mouth Cancer Foundation' site (I hope it's ok to say that!) but, as I mentioned, we have very little experience of the drug (Erbitux)and I am doing my darndest to gather info to lobby the 'powers that be' into making it available to mouth cancer sufferers on the NHS. It was turned down here as a possible drug for bowel cancer,presumably because of the cost. Let's hope we have better results. Thank you again. Brenda.