I have been registered and reading this board for about 2 weeks. My sister has squamous cell carc. base of the tongue.. spread to layrnx and nodes both side. Hhad treatment for what they thought was tonsil cancer, but missed the base of the tongue.

Hse will undergo a radical neck disect/remove voice boX(they say it has spead too much to save any part), 3/4 to full tongue removal. She has had her max of radiation. It did not help stop the cancer.

I am having a hard time finding local support group/help in the south bay area in Ca. SHe will be at Kaiser in Oakland. Any suggestions would be greatly appreciated. She is having a hard time even wanting to fight and go through this surgery. She has had a PEG tube for 6 mos and will probably not be able to swollow again. Epiglottis is affected as well.
I am hoping that I can get her here to this website.. She has not had contact with any support groups .

thanks

trish