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collie
Member
Member # 3129

posted June 17, 2006 10:40 AM
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I'm not too sure where I'm posting this, but here goes: My 44 yr son was diagnosed with scc under the front of the tongue in late March. ENT removed a small tumor the day he saw him. He also had a swollen node in his neck about an inch and 1/2 long. He has now completed chem (immediately pills and 2 intravenous over 1 mo.) and about 33 daily rad. (except wkends) He has a feeding tube. I have spent hours reading the posts here and find it extremely helpful (and scary). He has just finished the radiation and now for the next big question:

If the node has not disappeared completely in 30 -40 days, is it a given that it must be removed surgically. We hoped it would be gone by now but it isn't. Here's the problem - ENT is older, more experienced and we think maybe too sure of himself and possibly a little arrogant. Statements such as "only I know" "I decide" etc. throws up a red flag to me. The radiologist is younger, seems very competent and in our opinion maybe more up to date with the latest schools of thought. There is a team and the ENT seems determined right now that surgery (extensive) will be necessary. Radiologist has not said in words, but sort of indicated that maybe just the one node could be removed and tested. If ENT is determined to cut, we are going for a 2nd opinion. I mean, once it's gone, it's gone. We also opted to keep the teeth. Any comments would be greatly appreciated. DigTexas described his treatment and I didn't see any surgery connected with that.

I also wondered if having had your tonsils removed early was a good or bad thing. Thanks to all you brave and courageous folks - Collie
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Posts: 1 | From: SW Virginia | Registered: Jun 2006 | IP: Logged