My tumor was base of tounge moving down towards but not to the vocal cords. I had a trach July 15 2025. 6 chemos (1 a week) and 35 radiation (5 a week) started September. Trach was removed Jan. 15 2026. A persistant sore was at the top of the throat way back above the tumor site. ENT did a harsh biopsy back there in Jan. that set back reovery. 175 pounds to 130, up to 140 before the biopsy, down to 120, nnot back to 150.

Different tastes buds have been waking up. Salt is very difficult for me. Saliva is tough & I take Pilocarpine several times a day. When I wake up my mouth is very dry and requires multiple rinses with warm water to wake the mouth up. The tounge just feels bad. My teeth feel loose.

My team says this is just the healing process and be patient.


Paddi