Hello, First time here on site. Lichen Planus turned south (cancerous) for me on my tongue. Surgery removed tumor and 20% of left side of tongue in early February 2025; concurrently 30 lymph nodes removed but tested negative for cancer. Still given "Stage III" due to the way the "cancer was directing itself." Recommendation is for "standard" 6-weeks of bilateral radiation to both sides of neck and cheek to tongue.

My fear is that radiation will trigger LP which in turn will go south again.

Do any of us with tongue cancer every forego radiation or do we simply follow oncologist/radiologist advice and live with the related long-term side affects that aren't nice, but hope we're on the "right side" of the 50% chance that it won't reoccur?

Where are the clinical studies that follow patients who opt not to go with radiation treatments?

Thank you for any insights.