Once this has happened you are where you are. I am in the same situation. I’ve been on a permanent PEG feeding for five years. There is no treatment for this situation. Accepting things and ultimately getting the right low profile PEG, and then learning to blend your own real foods to bolus syringe put into the peg is the best long term idea. You don’t want to live on pharma company junk that isn’t ideal nutrition . I miss eating normally and the pleasure derived from it. But if this is the situation, finding acceptance and learning to do this well you can get on with an otherwise normal life. I’m eating healthier than I have in my whole life. It’s improving other aspects of my health. You have to become a student of nutrition for a while but once you have a system down this is fast and simple. There are people here that can help you get started when you are ready. You will have one type of peg first that dangles in front of your stomach. But in a couple months after the stoma has healed properly, you can swap that out to an inconspicuous button called a mic key, and life gets simpler.

Trying to continue drinking and eating normally will ultimately lead to silent aspiration of liquids and foods into your lungs. This will cause pneumonia. While that can be treated with antibiotics, if it happens repeatedly it will become antibiotic resistant and can kill you. You need to accept the cards you’ve been dealt and learn to do this in an intelligent way.


Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.