"OCF Canuck" Patient Advocate (1000+ posts) Joined: Sep 2006 Posts: 1,357 Likes: 5 | Firstly., you need a good suction machine and you need to use it often. I have one (also Nothing my mouth) and between that and my waterpik I am dealing with the mucus. A lot of the mucus we experience is that which everyone has all night but they swallow it without knowing it - for us - we have to deal with it. This is the least pleasant task I have but I will live! I gave the GENTLE waterpik heads. I set it on low., fill the reservoir half full if warm water and mouthwash (non alcohol of course) I then lean over the sink and direct the spray all over my mouth. You would be amazed at how much gunk comes out. It feels great when it is over. The suction machine has to be cleaned every day or every other day. Again, not my favourite task but a necessary one. Try it. If you have feeding tube issues let me know. I am hardly experienced compared to many (my tube put in 1/22 but I have been learning.
Donna (Pandora99)
Donna,69, SCC L Tongue T2N1MO Stg IV 4/04 w/partial gloss;32 radtx; T2N2M0 Stg IV; R tongue-2nd partial gloss w/graft 10/07; 30 radtx/2 cispl 2/08. 3rd Oral Cancer surgery 1/22 - Stage 1. 2022 surgery eliminated swallowing and bottom left jaw. Now a “Tubie for Life”.no food envy - Thank God! Surviving isn't easy!!!! .Proudly Canadian - YES, UNIVERSAL HEALTH CARE IS WONDERFUL! (Not perfect but definitely WONDERFUL)
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