Thank you for your replies.

I had my appointment at MD Anderson. MD Anderson requested the sample and ran their own testing. Both pathology reports came back with similar results. My MD Anderson doctor said I do have Leukoplakia, but he said nothing on my biopsy report or currently in my mouth points towards PVL. I do have multiple small areas of Leukoplakia, but he says that does not mean I have PVL. I have a follow up in 3 months and they will keep a watch on the areas.

I wish my original Periodontist could have handled the situation better. Even if I did end up having PVL, telling me "this is not good" and I was the first person he had seen with this in her 43 years of practice was not helpful, it made me panic.

I appreciate having this forum.