Thank you for replying. I wish it were SCC or basal cell carcinoma of the scalp-- that would make MOHS surgery possible, and also skin graft rather than free flap. It isn't certain that they will use radiation, but likely. A skin graft would fail if radiated. One surgeon will open the scalp with one to two inch margins (which means a large oval probably seven to eight inches in the long dimension) and the other will reconstruct the scalp with a free flap, insuring a blood supply. I suspect they will use my left latissimus muscle. Between excision and reconstruction they will remove all visible cancerous tissue, and I assume will use a microscopic tool in doing so. That tissue will allow a more thorough pathological study.

They are fairly certain that it is this pleomorphic dermal sarcoma. I can't find any sarcoma support group nor head and neck support group that mentions it. There is a general sarcoma group on Facebook. I can find two case studies which discuss the procedures, and I can also find statements that it is very rare and possibly aggressive

Thank you, I will let you know how it goes. I'm scheduled for the surgery on August 22.

best wishes, Jon Angel


SCC, HPV-related P16 Stage III T1N1M0
(prim. site rt base of tongue, 1.5 cm, 1 lymph node, nearly 3 cm)
Rad neck dissection 5/19/17 no probs
TORS 5/26/17 remove rt tonsil and divot at rt base of tongue
Arterial bleed at surgical site 5/31/17, 5 days intubated and sedated
Asp. pneumonia, hosp acquired pneumonia, DVTs
Tot 13 days in ICU
31 days targeted rad, until 9/21/17
No evidence of disease since
Still G-tube dep
Very grateful to be alive