Hello all. My name is Steve and while I am not new to OC I am new to the group. After 4 "small" surgeries and finally a partial glossectomy with arm flap reconstruction last April I had hoped to be done with OC but its back again and seems to be more aggressive this time. I am waiting for a new plan from the tumor board. Looking forward to interacting with fellow survivors.
Steve - SCC survivor
first SCC dx in 2016 by oral surgeon through biopsy of leukoplakia and lichen planus; first tongue resection 2016; three resections 2017-2020; partial glossectomy & flap reconstruction 2021; newly dx SCC return + lymphovascular invasion 5/22
tx to date surgery only - no rads, no chemo; speech therapy helpful, diet limited but eating mostly works
waiting for new treatment plan from care team - looking for tx other than full glossectomy
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