This is a really rare thing to have happen. It is poorly understood why they occur, though there has been lots of ideas what might cause them. You don’t say much about how you were diagnosed, and if that is definitely confirmed. Please post. Your list of symptoms is quite long and perhaps not 100% related to this. When these occur near the adrenal gland, they certainly cause a ton of cascade neurological symptoms since there they are impacting something that puts out hormones, which in turn affect these many different systems you mentioned. Would you post about what additional testing they are going to do, and if positive for this what their treatment ideas are?

This is so rare I’m pretty sure you are the first to post about this in 22 years here. That means help from us outside of emotional support will be lacking. Please know that we are here to do what little we can even if it is just giving you a place to vent about all this. We hope that the resolution to this is fast, not overly invasive, and that you rapidly return to full health. B