I’m pretty new to this myself, but wanted to post once I read your experience, RussellSR. So very sorry to read about all of the shuffling around and delay in treatment. How hard!

I have insurance, but it seems like the ENT runs everything and has been wrong sometimes and gives me fast, sometimes conflicting info. My group won’t pay for a second opinion out of network.

It sometimes feels like all the calls and self-advocacy is more challenging than the cancer! I know that in the US, there’s lots of free services thru cancersupportcommunity.org. Hang in there. I hope you get in with the docs asap