Hi Sue,
I'm sorry to hear you've had terrible experience with your medical professionals. Radiotherapy is tough, you ache, your mouth is sore, you get ulcers, you produce a ton of mucus, your hair falls out at the back of your head, you have a weird taste in your mouth for ages (mine was salt), yet you can get through it. It feels like the side effects are forever, but they are not. A couple of weeks after you have finished treatment, you start to notice small improvements, then you get dry mouth, but that doesn't stay for too long. Each day gets a little bit easier, the ulcers dry up, the weird taste goes and you can start to taste things again.

We're here to help you through this.


F 39 x-smoker no alcohol
05/20/19 T4aN1/N2bM0 SCC a whopper of a tumour at 8cm long & 4cm wide
Pembro pre & post surgery
RIG
Glossectomy ND RFFR 08/13/19
RT x33
2x cispltin
So far, no evidence of disease
Now an author of a recipe book for mouth cancer patients