Hey All
Radiation or No Radiation???

I just finished surgery for a second bout with SSC (left lateral side this time). I'm posed with the decision of going through radiation treatments or taking my chances just riding out what is left. I've been through the wringer the past 25 years (bone marrow transplant for leukemia) so I'm no stranger to fighting,enduring and suffering. Radiation was my worst case scenario facing me. I'm familiar with mouth sores, thick mucous and scleradermal jaw locking. I've been able to keep my teeth despite a moderately several case of dry mouth for 25 years. I asked my radiation oncologist about side effects during and post treatment and he ventured to say that the possibility of them being worse for me is more likely due to my current health status.

I'm 56 years old have and have good support. Friends and family accept any decision I make.I'm just looking for others experience (I know everyone is different). As I see my position now, I have worked hard to get my speech and eating going post 2nd surgery and it's hard to imagine losing all that traction just to be a lower starting point. Quality of life vs suffering is in question.