Thanks Christine. It was a rare side effect (only person in the trial) to have this stomach inflammation. Ahh well. I take lanzaprazole which helps with other stomach issues.

Well I've been doing well. My weight has been stable for 2 weeks now. I've not used the feeding tube in neatly a week. I'm mixing foods and ensures (dinner tonight is soup, ensure and ice cream). I'm hoping that a few more weeks of this will mean no more tube. Then, once isolation has lifted, I can go swimming.

I'm keeping safe at home during this awful time. I hope you all are too


F 39 x-smoker no alcohol
05/20/19 T4aN1/N2bM0 SCC a whopper of a tumour at 8cm long & 4cm wide
Pembro pre & post surgery
RIG
Glossectomy ND RFFR 08/13/19
RT x33
2x cispltin
So far, no evidence of disease
Now an author of a recipe book for mouth cancer patients