I am going to start a new post but thought I would respond on this one first.

What you mentioned sounds like what they plan on doing after they see how much radiation he has had. he is having a CT guided biopsy in the morning. Then the amount of radiation determines if he does the 5 days or 6 weeks of radiation I believe.

They believe his response to chemo and radiation was so good the first time that this area was probably missed due to it's location and I will say that area was lit up even at his first PET scan and they didn't know if it was cancer or inflammation.

They are also looking at using Keytruda or Opitvo (sp?) for the immunotherapy.

This doc says she has only lost 1 patient who had this similar situation and expects a 80-90% success rate. He would get treatments for immunotherapy an hour away but I believe the radiation would be 5 days or 6 weeks at Mayo since we are 4 hours south.

thanks for telling your story Paul as we had not been told about possibly surgery being a option.

He is so happy with Mayo because they are much more positive than University of Iowa has been.


Last edited by ConnieT; 03-09-2020 12:53 PM.

Spouse of 58 yr old with BOT cancer
Stage 4a HPV16 positive
3 chemo treatments cisplantin
35 radiation treatments 7000 cGy
former smoker/chewed tobacco for 38 yrs.
1/2020 diagnosed with cancer near TMJ
4/2020 chemo 5 days every 2 weeks
6/2020 proton therapy
9/21/2020 cancer free