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| | Joined: Mar 2018 Posts: 34 Contributing Member (25+ posts) |  Contributing Member (25+ posts)
Joined: Mar 2018 Posts: 34 | I had Proton therapy 35 treatments plus weekly Cisplatin back in April-May 2018. It was a rough go and I'm not sure my side effects were any less than regular IMRT. What was the main concern for me was the hope of less future damage from Proton and time will tell if that is a benefit or not.
18 months later, I feel like my old self with dry mouth only at night. Hoping thats the worst of the damage done.
Best of luck to you!
Linda
Stage 3 SCC of tongue/floor of mouth. Originally Stage T1N0M0 but one pesky lymph node discovered in neck after resection.
Now T1N1M0
Surgery 2/16/18 at UAB.
30 Proton Therapy Treatments
Cisplatin Chemotherapy
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