Hi Drew,

So glad to read that you are feeling so positive about the “ordeal.” I have found the help from CCAC amazing, too. We had pumps (for hydration) delivered, all kinds of gauze pads, gloves, whatever, delivered. The only downside was that the delivery service wasn’t communicating well with the CCAC office. But I thought I couldn’t complain since I got it all free and was given stuff that I didn’t even know I needed. My husband had weekly visits from a nurse, even during the worst ice storm. Then he also got a PSW who came to bathe him when he was in palliative care. I kept telling people that I would never complain about the high taxes again.

Good luck with the radiation and chemo.


Gloria
She stood in the storm, and when the wind did not blow her way, she adjusted her sails... Elizabeth Edwards

Wife to John,dx 10/2012, BOT, HPV+, T3N2MO, RAD 70 gy,Cisplatinx2 , PEG in Dec 6, 2012, dx dvt in both legs after second chemo session, Apr 03/13 NED, July 2013 met to lungs, Phase 1 immunotherapy trial Jan 18/14 to July/14. Taxol/carboplatin July/14. Esophagus re-opened Oct 14. PEG out April 8, 2015. Phase 2 trial of Selinexor April to July 2015. At peace Jan 15, 2016.