Platinum Member (300+ posts) Joined: Jun 2013 Posts: 346 Likes: 3 | I'm not sure swallowing ever becomes a mindless action, exactly, but it DOES get better. You get to where you don't think so hard about it ... but yes, choking randomly still happens, and seems like it maybe always will. I'm about five years out of treatment now, for that stuff at least. You do usually get to eat more normal foods again, though taste and spice and such will take time to adjust. I had a great speech therapist who worked with me once the radiation healing was done and I was off the feeding tube and such ... she had exercises for swallowing, for the tongue, for the neck ... massage techniques for the neck ... all sorts of good stuff. I only had a partial neck dissection and no trache, so that may change how they approach therapy, but they should have something for you as you improve.
((hugs)) You found a GREAT forum ... I know they've kept me going through some tough times!
Surgery 5/31/13 Tongue lesion, right side SCC, HPV+, poorly differentiated T1N0 based on biopsy and scan Selective neck dissection 8/27/13, clear nodes 12/2/13 follow-up with concerns 12/3/13 biopsy, surgery, cancer returned 1/8/14 Port installed PEG installed Chemo and rads 2/14/14 halfway through carboplatin/taxotere and rads March '14, Tx done, port out w/ complications, PEG out in June 2017: probable trigeminal neuralgia Fall 2017: HBOT Jan 18: oral surgery
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