I'm so sorry your having to go through all this. frown It is soooo hard to live with the new normal. It really does take a while to allow ourselves to mourn for the us that we used to be, the lives we used to have and to accept our new normal, including appearance. I can understand that your still sad about lowing your teeth. I am six months post op, 3 months post rads and am trying to do everything I can to not lose my teeth but my consult with my dentist really hit home that the lack of saliva is already taking a toll.

Was your neck dissection done with your last surgery or prior? I felt so unhappy about my neck from the lymphedema and the scar and the main thing that has been helping is physical therapy. I go twice a week and they massage and work the scar and all the tissue to get the lymph fluid to drain away and my scar to be less puffed up. I also wear rock tape or clear scar sheets. You wouldn't think some sticky material would make the whole area feel better but IT DOES. I was so not a believer until I tried them both. The sticky material allows the skin to pull away from the other tissue to create a channel which allows for improved blood flow and lymphatic drainage. It might be worth a shot since you mentioned you have pain. Obviously, check with your doctor first, I'm just throwing ideas out.


Laura Age 40
Tongue lesion on left side grew and was hurting in mid-August
Dx as squamous cell carcinoma on 9.18.18
Left Neck Dissection and tongue surgery, lost a fourth of my tongue on 10.1.18, tumor had grown to a T3
Margins were clear except front section of tongue margin had three stray cancer cells that were not in the tumor
Additional surgery 10.18.18 to remove another cm near where the stray cells were found
33 radiation treatments from Nov 2018 through Jan 2019