Welcome to the Oral Cancer Foundations online message board! Our group is made up of oral cancer (OC) patients/survivors and caregivers. We have experience with oral cancer, its often barbaric treatments and the very long recovery from it. As a mother I feel so sorry you and your son are going thru so much. Ive been thru some serious health concerns with my children and it can be very frightening. Im sorry but I can not remember any of our members posting about osteoblastoma in the past 12 years Ive been part of this organization. I have read every single post that has been written in that 12 years and even doing a search of all out posts going back over 20 years there isnt anything here about osteoblastoma. Your son is having a mandibulectomy which many have had here, myself included. The mandibulectomy is probably what led you to our site. The procedure you described sounds similar to what OC patients have but being your son has a different disease Im sure there are major differences that we (as non-medical professionals) would not know anything about.

At OCF, we always try to help everyone and hate to turn anyone who needs help away. Unfortunately your sons condition is not cancer which is what our members have and know about. You can read thru posts here and on our main OCF site but what you are reading is about cancer treatments not for what your son has going on. I honestly feel you would find more info someplace that deals with osteoblastoma. The best thing I can do to help is to advise you prior to any major surgery to get at least one second opinion from a different treatment center. This is important, even more-so when talking about rare diseases. I do not know or recommend any one specific treatment facility, especially about a non-cancerous disease Im not familiar with. There are many websites that have specific criteria they rate the facilities on and each has their own rating system. What treatment facilities are top-notch for oral cancer may not be the best for other diseases. We wouldnt know what places or doctors were best for your sons rare illness. Our members are told to find the very best medical care they can and go with it.
This should also be the same for any other disease. This frequently is out of state facilities for OC patients to get treated by the country's top doctors.. You may need to travel to find more experienced specialists. I suggest finding specialists who do surgeries like what your son needs several times a month instead of only a random patient a couple times a year. Experience does make a difference!!! At least it does for OC patients.

Wishing you and your son all the very best., Im sorry we arent able to help you with your sons condition. Good luck!!!