Brad, you are absolutely right about having a plan for stepping down. I was also glad to read that you got help from your PCP. Once the heavy duty treatments are over, most patients only get a monthly/three monthly call back to see their oncologist, but many patients still have issues which need to be taken care of in the mean time, between appointments. A good PCP can be a tremendous help. My husband relied on his all through. The PCP is much more accessible than the oncologist. It is really important for patients to keep that in mind.


Gloria
She stood in the storm, and when the wind did not blow her way, she adjusted her sails... Elizabeth Edwards

Wife to John,dx 10/2012, BOT, HPV+, T3N2MO, RAD 70 gy,Cisplatinx2 , PEG in Dec 6, 2012, dx dvt in both legs after second chemo session, Apr 03/13 NED, July 2013 met to lungs, Phase 1 immunotherapy trial Jan 18/14 to July/14. Taxol/carboplatin July/14. Esophagus re-opened Oct 14. PEG out April 8, 2015. Phase 2 trial of Selinexor April to July 2015. At peace Jan 15, 2016.