I’m sorry for your troubles Hopeful55!

I’m not as familiar with sarcoma as I am with my own type of Squamous Cell Carcinoma of the head and neck.

Have you looked into immunotherapy? I don’t know what type of sarcoma’s their used on, but understand it was first used on some type of sarcoma early on.

Can they do re-surgery without too much debility?

I’ve had radiation 5x to the same area with three different types of radiation: IMRT, IORT and Proton Radiation.

There are different types of radiation. Proton Radiation, which I had, is fantastic. There are two locations in NJ. There is also implant radiation (brachytherapy), which name escapes me. Some type use radiation seeds and other rods.

There is High Dose Intraopertive Radiation which I had, HD-IORT, that is used by a few radiation oncologists and surgeons.

There is another type radiation used for small depth cancer, which name escapes me. Was used in Buffalo, NY at Roswell Park. It’ll come to me later on, and will add it.

I hope this helps

10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs