caregiver of a BOT stage 4a with lots of lymph node involvement.

we have learned some doctors do surgery but others start with radiation and chemo. we were told by the ENT that surgery was a last ditch attempt. just the belief system around here.

my husband is several months out of treatment, eating whatever he wants and is getting feeding tube removed Thursday though he is supposed to have another PET scan in 5 weeks. He says they just want more money so I"m not sure if he is following up or not. He's pretty arrogant about all of this so I guess we will see.

Some of the tests have taken more than a week to hear back about, others within a day ro so. no realy rhyme or reason other than holidays and weekends seemed to slow down hearing results most times.


Spouse of 58 yr old with BOT cancer
Stage 4a HPV16 positive
3 chemo treatments cisplantin
35 radiation treatments 7000 cGy
former smoker/chewed tobacco for 38 yrs.
1/2020 diagnosed with cancer near TMJ
4/2020 chemo 5 days every 2 weeks
6/2020 proton therapy
9/21/2020 cancer free