At the moment I am trying to figure out what is normal and expected under the circumstances.
My daughter finished radiation about five weeks ago. Ten days ago her swelling was decreasing, she was eating
about 80% of needed calories, and could open her mouth the width of two fingers. Then suddenly she had
a major swelling episode, cannot eat, and can't even open her mouth the width of one finger.
Fortunately she has a peg tube and can get needed nutrients. But this setback surprised us, although
I should have expected something. I am hoping others can tell us if they have had similar experiences.


*****ADMIN*****Added third post to ongoing thread......
I'm wondering if anyone has had issues with swelling improving and then coming back with a vengeance.
My daughter finished six weeks of radiation on December 18th. The pain and swelling slowly decreased and she
was eating about 80% of needed calories (vs. peg tube). About 9 days ago the swelling came back
in a big way. She can just barely open her jaw, and cannot eat. Pain is back.
Pushing to see surgeon next week (5 hour drive). Would love to hear from others on this.

Thanks, Connie