This is a response to all comments.

In regards to treatment recommended from MD Anderson, the surgeons were leaning toward robotic surgery, the radiation oncologists recommended radiation and the medical oncologist specializing in chemo recommended radiation and chemo. Same old story...I have a hammer and everything looks like a nail.

I learned through having Leukemia not all doctors know the correct treatment, even very good doctors. You just advocate for yourself and find those who are aware of the latest discoveries and recommendations for treatment. While MDA did very well with my CLL and my doctor their is in the top 5 in the US, perhaps my assumption they would be the best at Head and Neck is incorrect.

Plus I have yet to see an exhaustive comparison between IMRT and IMPT to be able to judge if IMPT is really worth relocating for treatment.

I have also not seen, but still researching and asking doctors the real benefit of adding chemo to radiation treatment. Some comments were it adds 2% to your success stats...hmmm...

So for my treatment I do plan on getting more opinions and my questions answered by more than Dr. GOOGLE or anecdotal info posted online and then making the decision. Patients who post online are wonderful for sharing the challenges and solutions they have found and I can see this site has great people taking the time to share their experience in hopes to help others.

But, I have learned over the years that people who post online whether it is a product review or disease are either in the initial stage of earching for answers or have problems. Most who do not suffer the worst do not post. Some do.but most do not.

I am glad to have this resource to understand potential, maybe probable issues. It will help me plan for after treatment.

All the best to your all.