grad school daughter lives at home. she came to me today to say her dad is milking this sickness which she predicted would happen from day 1. She said he could be doing something besides laying in that bed 24/7. It's good to hear another perspective as I don't know what is real and what isn't and I've elluded to that before.

In my head, I'm giving him until we hear that PET scan diagnosis on Thursday to milk it and be helpless. I do not know what the results will be, it could be good news, it could be bad news. I'm about ready to ask his boss to give him some kind of work project. I agree with daughter that he can't get any better just sleeping most of the time and his only exercise is to walk 10 steps to the bathroom.

Any thoughts, experiences on knowing what is real and what is just feeling sorry for oneself. I truly do not know how to interpret what I see day to day.


Spouse of 58 yr old with BOT cancer
Stage 4a HPV16 positive
3 chemo treatments cisplantin
35 radiation treatments 7000 cGy
former smoker/chewed tobacco for 38 yrs.
1/2020 diagnosed with cancer near TMJ
4/2020 chemo 5 days every 2 weeks
6/2020 proton therapy
9/21/2020 cancer free