OP Contributing Member (25+ posts) Joined: Oct 2017 Posts: 36 Likes: 2 | Hi there
its 1 year after my tongue surgery / re-construction. The good news is that there was no evidence of disease per my last CT scan.
however, I am still struggling with various treatment side-effects
problems like stiff neck / shoulder / limited arm movements especially the left arm, I tried physiotherapy and acupuncture with limited results
the ear noise seemed louder , but still bearable
still use PEG feeding, my new tongue still swelling
my speech is regarded as 60% discernible
yet to sort out dentures
overall, I feel better. But the recovery process is longer than expected
there are lots of reports of new drugs for malignant tumor, not sure whether they are effective for tongue SCC
Take care
Michael
T4aN2cM0 left tongue SCC 10/17 Moderately differentiated SCC PEG, Trachy, glossectomy, en bloc neck dissection and reconstruction 11/17 Perineural invasion present Radiation (IMRT) and Chemo ( 2xcispltn) completed 2/18 PET - NED 05/18 CT - NED 07/18, 10/18 CT - NED 02/19, 06/19 MRI H&N, X-ray chest - NED 10/19 MRI H&N NED 05/20 CT - NED 10/20 MRI - NED 04/21 CT - NED 10/21 CT - NED 4/22.10/22 CBCT - NED 10/22
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