Hi there

its 1 year after my tongue surgery / re-construction. The good news is that there was no evidence of disease per my last CT scan.

however, I am still struggling with various treatment side-effects

problems like stiff neck / shoulder / limited arm movements especially the left arm, I tried physiotherapy and acupuncture with limited results

the ear noise seemed louder , but still bearable

still use PEG feeding, my new tongue still swelling

my speech is regarded as 60% discernible

yet to sort out dentures

overall, I feel better. But the recovery process is longer than expected

there are lots of reports of new drugs for malignant tumor, not sure whether they are effective for tongue SCC


Take care

Michael


T4aN2cM0 left tongue SCC 10/17
Moderately differentiated SCC
PEG, Trachy, glossectomy, en bloc neck dissection and reconstruction 11/17
Perineural invasion present
Radiation (IMRT) and Chemo ( 2xcispltn) completed 2/18
PET - NED 05/18
CT - NED 07/18, 10/18
CT - NED 02/19, 06/19
MRI H&N, X-ray chest - NED 10/19
MRI H&N NED 05/20
CT - NED 10/20
MRI - NED 04/21
CT - NED 10/21
CT - NED 4/22.10/22
CBCT - NED 10/22