Do you have the special mouthwash (Magic Mouthwash or whatever it goes by in your area)? Lidocaine plus various ingredients, depending on the formulation in each place. That can help with the mouth. Even if you're not eating by mouth, it does numb for a bit. (Again, you may already have this, but worth mentioning in case you don't.)

(ETA: if you're just rinsing and not swallowing with it, you can use it fairly frequently... don't be afraid to use what you need!)

And I am REALLY glad you are already on the Fentanyl and other stuff ... I wish it would do more for you, but it does help!

((hugs))

It will get better. It will get better. It will get better. (Keep telling yourself this. It's true.)

Last edited by KristenS; 11-23-2018 07:52 PM. Reason: clarity and update
Surgery 5/31/13
Tongue lesion, right side
SCC, HPV+, poorly differentiated
T1N0 based on biopsy and scan
Selective neck dissection 8/27/13, clear nodes
12/2/13 follow-up with concerns
12/3/13 biopsy, surgery, cancer returned
1/8/14 Port installed
PEG installed
Chemo and rads
2/14/14 halfway through carboplatin/taxotere and rads
March '14, Tx done, port out w/ complications, PEG out in June
2017: probable trigeminal neuralgia
Fall 2017: HBOT
Jan 18: oral surgery