ATTENTION OCF MEMBERS!!!! OC PATIENTS/SURVIVORS AND THEIR CAREGIVERS...

If anyone has not taken a few minutes to take this survey, PLEASE do. Its very simple and only takes a few minutes. Caregivers are able to participate as well. This survey is not limited to US residents. Anyone in any other country is able to take part in this survey. The only limitation is they must speak, read and write in English.

PER BRIAN... An important group is reaching out to OCF asking us to help them better understand the patient perspective on the process we all endure. This is a group which are the primary surgical team doctors in our treatment. In an endeavor to help them better interact with their patient populations and improve patient issues that may be discovered in a survey. This team is asking members of our forum and also in the OCF social media circles, to take their a survey which will help future patients by their doctors understanding much more of what patients endure after going thru OC and treatments for it.

If you have not yet taken the survey, please take a few minutes to help us to help those who will be diagnosed in the future have better medical care and understanding. Your input really is that important and is going directly to the right people who work with patients every day. At OCF we rarely ask anything from our patients/survivors or caregivers. This survey is important!!! Several OCF staff have spent hours helping to make the survey as easy as possible while still getting all the points in. Sadly there was an embarrassingly low number of participants which is why Im bringing this back up to the top. PLEASE help us to help others by providing your anonymous input.

PS...

*** Its very simple to participate! ***** . Send a brief email to ... [email protected] with a something like....[ "I found this survey on The Oral Cancer Foundations message board and as a survivor (patient or caregiver) Id like to participate in your oral cancer survey"

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Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile