 Assistant Admin Patient Advocate (1000+ posts)
Joined: Oct 2012 Posts: 1,275 Likes: 8 | Dear TM111,
I’m sorry to hear that you have been dealing with this rare condition. I did a quick search of the forum and other posts on “clear cell odontogenic carcinoma” did not turn up. So, it’s likely that it has not been discussed on this forum. We are a group of patients and caregivers and while we have, among us, a lot of experience dealing with oral cancer, none of us is a medical researcher or professional.
Where are you being treated and what kind of treatment have you had? If you could be a bit more specific about what kind of info you’re looking for, maybe someone among us can respond.
Gloria
She stood in the storm, and when the wind did not blow her way, she adjusted her sails... Elizabeth Edwards
Wife to John,dx 10/2012, BOT, HPV+, T3N2MO, RAD 70 gy,Cisplatinx2 , PEG in Dec 6, 2012, dx dvt in both legs after second chemo session, Apr 03/13 NED, July 2013 met to lungs, Phase 1 immunotherapy trial Jan 18/14 to July/14. Taxol/carboplatin July/14. Esophagus re-opened Oct 14. PEG out April 8, 2015. Phase 2 trial of Selinexor April to July 2015. At peace Jan 15, 2016.
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