Sounds like your docs are taking very good care of you with the hydration and getting the PEG tube so quickly. Thats really great having the feeding tube done so quickly!!! You definitely need it!. Im sure you can tell the difference in how you feel losing so much weight so quickly. Its unbelievable how fast it can just melt right off you when going thru rads. Its not just water weight coming off, its muscle as well which can make you feel week and have much less stamina.

Theres many here who have gotten a PEG tube after their treatments began. Its just another tool to get us thru rads as easy as possible. You may be expecting to have outpatient surgery to place the PEG tube. Its pretty common for patients to stay at least one, sometimes 2 nights in the hospital. I ended up staying in too. You may be in some pain after the surgery so if you are hurting dont hesitate to ask about being admitted. Often patients are not given enough follow up care or support after getting their feeding tube, ask about having a visiting nurse to stop a few times a week to help you with learning how to use your feeding tube. Being new to the feeding tube you really will need a hand. You should be all set up to get your feeding tube supplies (drain sponges, syringes, paper tape and thru a medical supply company. The nurse will come out the day you first go home from the hospital and help you learn how to set everything up to do a feeding. That nurse will only be there once at your first dayThe hospital or your doc will get you set up with formula and all the accessories to go with the feeding tube. Make sure you get a kangaroo joey pump!!! Its not always offered so you may have to ask about it. By having the pump, you will be able to do feedings while you sleep or watch tv. Just make sure you are propped up with at least 2 pillows or in a recliner.

Heres a few more random tidbits about have a feeding tube...

-After a feeding you should sit still for at least 30 minutes. Ive found if you can sit still for an hour, the extra half hour will help your stomach to settle.

-Theres many prescription formulas out there. If you are nauseous or having trouble adjusting to the liquid diet you may need a different formula. I found Zofran helped tremendously with the stomach issues.

-The most common feeding tube problems can be easily fixed. If you are using the feeding pump, try slowing down the rate of delivery first. Anti-nausea meds help too. After trying these suggestions, if your still having trouble tolerating the formula you may need to switch to another formula.

-After feedings, flush the tube with at least 2 oz of water. This is an easy way to up your daily water intake.

Any questions or concerns just ask. Theres lots of feeding tube users here that can help you.

Best wishes!!!




Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile