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| Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Snowflake, welcome to OCF! Im very sorry to read about your mother! Im sure this latest news has been very difficult on everyone!
Im sure your mothers doctors are doing the best they can for her. Im sorry if you have already exhausted all options for your mother already. Your mother probably already went thru all options but you just never know so I thought I should still mention the following just in case.... Have her doctors tried the new immunotherapy drugs that have worked very well for some patients with mets to their lungs. Its Keytruda or Opdivo that are the newer immunotherapy drugs. I would definitely ask her docs about those ASAP! If she hasnt already done so what about a second opinion at one of the top comprehensive cancer centers like Sloan Kettering, Moffitt, or MD Anderson? I do not mean to cause anyone any extra worrying by mentioning a couple options that might help your mother.
Determining exactly how long someone has left isnt an easy feat to figure out. Theres so many things that can play a part in the whole scheme of things. At OCF, we're a group of patients/survivors and caregivers who do not have medical backgrounds, years of medical training and education, the patients full medical history plus the patient themselves to examine (not that any of us would fully understand exactly what we were doing or looking at anyway. Unfortunately, our knowledge of oral cancer and everything that goes along with it is from things we ourselves have experienced first hand. Im very sorry but our knowledge would not ever be able to decipher your questions of your mothers situation and time frame. Even highly skilled physicians as you have seen, arent able to give an accurate timeline.
Wishing you and your mother all the very best with everything you both are going thru. ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | |
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