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| Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Being 3.5 months post rads/chemo makes a HUGE difference in your situation!!! You're right at the beginning of your recovery where theres still lots more heeling to do. For a complete recovery it takes patients a full 2 years and even after that many will report improvements in their sense of taste, smell, saliva and swallowing function up until they're 2. years post rads. You will want to be treated by someone who has years of experience with oral cancer (OC) patients and extra years of studying as well. I suggest checking where you were treated for a dental oncologist. Do yourself a favor and avoid any medical professional who is not very familiar with OC, its brutal treatments and seemingly lonngggg recovery phase. Steer clear of any professional who admits they arent that familiar with OC patients but wants to help you anyway... they could do more harm than good.
Be very, VERY careful with your choice of specialists!!! Good luck with this and please post updates as this is not one of our regular run of the mill issue most OC patients go thru. Thank you! ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | |
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