George,

Sorry you are here. Here is my advice, You now have cancer. This is serious situation. ALL OTHER THINGS are now on hold as you deal with this. You are YOUR primary caregiver. Find a group of doctors that 1) you are happy with and 2) will provide the correct treatment. Both are important. ENT, RO, MO are all important, make sure you are happy with them. Time is important, make your decision and don't look back. Moffet is as good as it get in oral cancer. By all means, IF it is feasible, just go there. All in 8 weeks 40+ trips.

Treatment can, and often is brutal. Plan on 4-6 months of not being at your best. The last 2 weeks of treatment and the two weeks after are the hardest. You will need help, don't be to proud to ask. You will lose weight, don't be afraid to eat a few of your favorite items over then next week or two.

Cancer effects are both physical and mental. Watch out for bad thoughts that spiral out of control. Start to recognize when this starts to happen. Once you made your decision on treatment, follow there instructions and don't think about it. Make all decisions based on successful treatment not failure.

Your life has now changed. Start clearing your schedule for the next 4 months. Get as much done now as possible. I am thinking cars, house, garage, yard, work.......... These things may become very difficult to do. I had trouble taking out the garbage for 4 weeks.

HPV Status is a good thing to find out but it really does not matter. Treatment is the same. I am 6 years out and doing very well.

Good luck and post often. It helps.



Last edited by Hockeydad; 09-19-2018 08:20 AM.

Hockey Dad
43, No smoke, Small BOT HPV+16
8/30/12 Biopsy found SCC in Lymph node (removed)
9/19 DX 4a T1N2aM0
10/1 TX 2x Cisplatin 35 IMRT 70 gry (Done 11/15)
PEG tube in 11/7. Out 1/4, Back at work 2/4/13
PET 2/13 Clear, 10/16 all Scopes Clear, 4/14 Chest X-ray Clear, 5/14 Abdominal ultrasound Clear, 8 yrs clean!!!