Hi its been a long time I have been cancer free 9 years but had radiation to my neck. Well I have been having a lot of flushing and feeling like my throat is closing and went to an Allergist from MGH Boston and was surprised to hear that she had other patients like this who was wasting away like me and unable to eat. After all the allergy testing and other diseases were ruled out in the ER and one week in the hospital I met with this new allergist and she informed me that this is long term results from radiation. One women she knew personally and could only eat 4 foods had no choice but to go back to the stomach feeding tube. How far do I let this go? Do I want to live on a stomach tube for the rest of my life however long that is? I am not sure. If anyone has any answers or had this happen to them, let me know. Thanks


SCC 2005 floor of mouth and neck disection
SCC 2009 partial rt tongue RAD
PEG 2009
20 HBO treatments following surgery of three teeth and 10 more HBO to follow
2015 Diced food diet due to weak muscles long term effects of radiation
2018 Radiation Fibrosis of the jaw and neck, vocal cord dysfunction