Platinum Member (300+ posts) Joined: Jun 2013 Posts: 346 Likes: 3 | A lot of us get the 'Where the heck did that come from?' version of cancer ... it is what it is. You're in good company here, and already got GREAT advice from Christine. Listen to her! She means it! (I probably should've done more with those fluoride trays but we never could get 'em to work right ... but they would've helped.) The feeding tube won't be all that bad, though it limits your physical activity (so you don't jar it loose). You may not need to start with it, but by the end it's nice to have it already there. And like she said, eat up, eat up, eat up! And line up some drivers for those treatments ... after awhile you will NOT want to be driving yourself. Let someone take care of you for a bit.
This is the BEST support I found throughout the whole ordeal.
((hugs)) Everyone here is rooting for you!
Surgery 5/31/13 Tongue lesion, right side SCC, HPV+, poorly differentiated T1N0 based on biopsy and scan Selective neck dissection 8/27/13, clear nodes 12/2/13 follow-up with concerns 12/3/13 biopsy, surgery, cancer returned 1/8/14 Port installed PEG installed Chemo and rads 2/14/14 halfway through carboplatin/taxotere and rads March '14, Tx done, port out w/ complications, PEG out in June 2017: probable trigeminal neuralgia Fall 2017: HBOT Jan 18: oral surgery
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