Platinum Member (300+ posts) Joined: Jun 2013 Posts: 346 Likes: 3 | People can only give their experiences here, nobody is a professional. What I can say from my experience: I was NOT told about all the ramifications of my treatment and its side effects. I did not understand what I was getting into. I had small children and I was scared. That was a bad basis for making a treatment decision. I've lived to regret it. And the thing is, I'm never sure whether the key word in that sentence is 'lived' or 'regret' ... but that's where I am. If I had it to do again, I wouldn't do it ... but then, if I had it to do again, it would mean yet another recurrence, and that'd be a whole 'nother ball game. There's just no knowing. I think I was given bad advice given the level of my cancer, and then bad follow-up care. I think others get better care. But radiation stays with you, no matter what.
Surgery 5/31/13 Tongue lesion, right side SCC, HPV+, poorly differentiated T1N0 based on biopsy and scan Selective neck dissection 8/27/13, clear nodes 12/2/13 follow-up with concerns 12/3/13 biopsy, surgery, cancer returned 1/8/14 Port installed PEG installed Chemo and rads 2/14/14 halfway through carboplatin/taxotere and rads March '14, Tx done, port out w/ complications, PEG out in June 2017: probable trigeminal neuralgia Fall 2017: HBOT Jan 18: oral surgery
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