People can only give their experiences here, nobody is a professional. What I can say from my experience: I was NOT told about all the ramifications of my treatment and its side effects. I did not understand what I was getting into. I had small children and I was scared. That was a bad basis for making a treatment decision. I've lived to regret it. And the thing is, I'm never sure whether the key word in that sentence is 'lived' or 'regret' ... but that's where I am. If I had it to do again, I wouldn't do it ... but then, if I had it to do again, it would mean yet another recurrence, and that'd be a whole 'nother ball game. There's just no knowing. I think I was given bad advice given the level of my cancer, and then bad follow-up care. I think others get better care. But radiation stays with you, no matter what.


Surgery 5/31/13
Tongue lesion, right side
SCC, HPV+, poorly differentiated
T1N0 based on biopsy and scan
Selective neck dissection 8/27/13, clear nodes
12/2/13 follow-up with concerns
12/3/13 biopsy, surgery, cancer returned
1/8/14 Port installed
PEG installed
Chemo and rads
2/14/14 halfway through carboplatin/taxotere and rads
March '14, Tx done, port out w/ complications, PEG out in June
2017: probable trigeminal neuralgia
Fall 2017: HBOT
Jan 18: oral surgery