This is really unfortunate, and I wish that I had some down under referrals to send you to, but all my contacts and knowledge are US based. I wish you the best with this, and if you would not mind me asking (at a time when you need answers yourself not questions from others) why didn't they do the radiation at the first go around? Here in the US, unless something is a VERY small, current standards of care in a multidisciplinary comprehensive cancer center, are to get concurrent radiation and chemo, with before or after surgical removal. Where we don't see that here, is when people are treated by a singular doctor working in private practice, and frequently without a "team' of associates that come from disciplines outside of the surgical realm. I would be asking this question of my doctors were I in your situation. Clearly you had occult mets of the disease at the time of the first treatments.

If you have a desire or ability to travel to the US for treatment, I would do my best to see that you were put in the best hands here. If I can help you along those lines do not hesitate to contact me. In the meantime if you have questions about the treatments, drugs they are proposing as you progress further into treatment, we all will do our best to tell you what we know about them, their side effects, alternatives, and if nothing more, we will be here for you emotionally. It seems so little, but this group is very giving and when faced with tough decisions and outcomes, you shouldn


Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.