I’m sorry your brother has such a long haul to treatments! Is it possible that he has somone to drive him? Otherwise, he is doing very well in treatment #26! If eating becomes too difficult, they can input a nasal tube, as recovery can take just as long as treatment was. They put in a nasal tube vs a gastric tube when eating is impaired for less than 6 weeks, and surgery for a peg tube at this point, may not be optimal.

His medication is pretty standard. Again, if he’s driving to and from treatment himself, the oxycodone, if taken close to his travel, is not desirable, as he can hurt himself or others, besides being illegal.

Eating can become difficult over time. He may want to eat “easy to swallow foods.” There’s a list somewhere here or can we can supply. Most supplement their eating or rely totally on a liquid protein drink that has all the needed nourishment. I had a peg tube, which I didn’t use until about week 3, but after that I used canned protein the center recommended.

I have diabetes, and during chemo, my glucose would go sky high, too high even to be measured by my portable glucose monitor (over 600). At one treatment, I had several, I was hospitalized for 3 days, two were on the weekend, due to dehydration, high blood sugar, which I was sort of glad so I could recover. I had to make-up the day at the end of treatment.

Good luck


10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs