Platinum Member (300+ posts) Joined: Jun 2013 Posts: 346 Likes: 3 | There can be SO many reasons. What doctors and specialists is he seeing, and are they aware of the situation? I've had to see a neurologist to help with strange jaw pain, but that was prior to my losing my teeth ... waiting to see if getting my dentures fit causes it to recur or not. We *think* in my case it's partly related to my migraines (which have triggers that can be related to the same nerves) and that it might be trigeminal neuralgia, but we're not sure. It took two neurologists to find a good listener instead of an idiot, and they have long waiting lists. My ENT (my cancer surgeon) gave me my first referral because it would go through faster than one from my primary physician. But I'm further out from my cancer. This close, your brother's cancer doctors are the ones to ask. Just plain tension can be a cause, as can TMJ. I have also found that holding my jaw in a new position while my teeth are out and awaiting replacement caused a lot of strange pain, more muscle pain though, because it is just new and weird. I can't imagine what it would have been like having it done at the same time as all the rest of the surgery and chemo and rads too, but that's a lot of pain to sort through. Too many potential reasons. Anyway, as the mods will point out, this forum can't diagnose, only strongly recommend that you have him speak to his doctors. And since he has a therapist, that person might have ideas too ... mine was good at helping sort things out, but again that was further out from treatment than your brother seems to be.
Surgery 5/31/13 Tongue lesion, right side SCC, HPV+, poorly differentiated T1N0 based on biopsy and scan Selective neck dissection 8/27/13, clear nodes 12/2/13 follow-up with concerns 12/3/13 biopsy, surgery, cancer returned 1/8/14 Port installed PEG installed Chemo and rads 2/14/14 halfway through carboplatin/taxotere and rads March '14, Tx done, port out w/ complications, PEG out in June 2017: probable trigeminal neuralgia Fall 2017: HBOT Jan 18: oral surgery
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