 Platinum Member (300+ posts)
Joined: Jun 2013 Posts: 346 Likes: 3 | See, I never even heard of a dental oncologist before today... that would be exactly the right sort of person. But at least he can ask now rather than later!
CM, you got this! Knowing what's coming and that you CAN do something about some of the pain and the issues makes a world of difference. This forum is a total sanity saver, and folks like Christine are amazing. I sometimes think the worst part of any medical issue isn't just the pain, but the helplessness from not knowing what to ask or what to expect ... and OCF helps a lot with both those things. (Can't fix the pain, alas, but the doctors do okay with that, once you know to ask!)
Surgery 5/31/13
Tongue lesion, right side
SCC, HPV+, poorly differentiated
T1N0 based on biopsy and scan
Selective neck dissection 8/27/13, clear nodes
12/2/13 follow-up with concerns
12/3/13 biopsy, surgery, cancer returned
1/8/14 Port installed
PEG installed
Chemo and rads
2/14/14 halfway through carboplatin/taxotere and rads
March '14, Tx done, port out w/ complications, PEG out in June
2017: probable trigeminal neuralgia
Fall 2017: HBOT
Jan 18: oral surgery
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