Thanks Christine for the detailed reply.
I guess I was confusing CCC, for Cancer Centers of Excellence.
Some medical insurance programs, have a separate rider to their coverage, that covers all cancer treatments at 100% if you receive all your treatments from a documented Cancer Center of Excellence. I think there are 33 in the county, and two on this list in NYC, Sloan and Columbia Presbyterian.

https://cmcnetworkmanagementtool.uh...on=&designation=COE&lobCode=COMM

I learned about this from a relative who had brain cancer, and has the rider, and used Sloan for all their treatments.
I don't have this rider, but my insurance has been very good so far in this journey.
I just looked on the internet, it looks like the acronym for these facilities, is COE's, as opposed to CCC's.
And I think the programs are run by a separate company from your health care insurer. The one my relative uses, is run by Cancer Resource Services (CRS).
I'm not sure if all of these programs are run by CRS.
I checked twice with my insurer, I don't have this rider.
But I don't think these riders are widely known, so it may be a suggestion for anyone going through treatments, to call their insurer to see if they have this rider. Someone with a high out of pocket plan, could potentially save thousands of dollars if they had a rider similar to my relative using a COE.
I'll keep in mind to possibly go to NYC at some point.
I am really conflicted on this, I am nervous that almost two months have passed without finding, or treating the primary cancer. I don't want to do anything to delay my TORS on 3/23/18.
But I see you have a good point with the group collaboration at a large CCC.
I still need my surgical clearance from my primary doctor, and I couldn't get an appointment immediately, I just got the surgery date several days ago.
It's amazing how complicated it is to move things along, everything from the tests, doctors, hospital availability, insurance approvals, etc. are all interrelated.





Enlarged left cervical lymph node in neck on 1/9/18. Male, age 60. Had retired from working as a computer technician and a project manager for almost 38 years, on 7/1/17.
Node was removed 1/16/18 and found to have SCC P16.
Chest xray clean.
Since then, PET/CT, slight activity left parotid, possible malignancy left lingual tonsil. MRI clean.
3 endoscopies, nothing seen.
2/26/18 Larryngoscopy,primary not found.
TORS 3/23/18 lingual tonsil biopsy.,biopsy negative.
Chemo/rads started 4/18/18.