I've just recently stumbled upon this website and thought it would be great to hear others stories about their oral cancer journey. I was diagnosed in January 2018 w/ Stage 3 SCC. The really sucky thing is that I knew something was going on but I delayed getting it checked out because I am a female, in my mid 40's who doesn't smoke, rarely drinks alcohol and doesn't have HPV. And to boot, I'm a dental hygienist! I feel liked I failed myself. Working through these issues.
After my diagnosis, I've been very grateful to have been referred to a wonderful surgeon and healthcare team that's taking great care of me. I had 2/3 of my tongue removed on the right side as well as a few lymph nodes Feb. 6th. My surgeon also did a flap procedure so I'm also recovering from grafting on my right thigh and left forearm. I still have my peg feeding tube in and will start radiation here in the next few weeks. What a journey this has been.
I'm enjoying reading other peoples stories about their experiences but I have to say, some are comforting and some are freaking me out! Trying to stay positive at all times.
Thanks everybody for sharing!!!