So i have the results of everything, have met with my doc, and have gotten a 2nd opinion at Dana Farber. Both recommended treatment plans were the same. The radiologist report for my PET says no cancer. Not even in the tongue. Both sets of docs say that means the tumor is too small to show. The PET report from the radiologist also said nodes are fine, but both radiation oncologists see a few nodes that concern them. The plan is to remove the area where the biopsy was taken to get clear margins. Won't be a flap surgery and won't need a trach thankfully. Would also do a left and right neck dissection to remove the nodes that concern them. Then 6 weeks of radiation. I have an MRI scheduled Mon to try to get a better look at the nodes that bother them. Chemo would depend on whether the nodes they removed were encapsulated or not (think that's the right terminology). I need to decide if i'm going to continue with my current doctor (non CCC) or switch to Dana at this point. I think i'm 95% sure i'm going to switch as much of what i've read on here says CCC is the way to go.

I considered this to be pretty good news overall. I've spent a lot of time on this site reading thru the posts about radiation treatment. Realizing its different for every person, it sounds like overall its a tough road. However, i'm confident its the right decision at this point and i'm very determined to get thru it. I've read a lot of Christine's posts on intake and the importance of 2500 cal per day min + 64 oz water min. Few questions:

1) How have people accomplished that goal who have had severe swallowing issues? Does it generally include an ensure type product or can anyone provide some examples of how they succeeded in meeting that goal
2) Does anyone have any other recommendations for "getting thru it" - anything that they felt was key to their success

Thanks for all the support. This site and the people on it are amazing and a tremendous comfort during a scary time.



-Male, age 43, no smoke or chew, mod drink, HPV -
-started with canker that wouldn't go away
-biopsies over next 8 years showed moderate dysplasia only
-8/13 biopsy showed cancer T1N0M0
-9/13 Partial Gloss w/ free flap from left wrist w/ neck dissection, trach, - no node involvement, no chemo or rad