Welcome to OCF, Jon! I was sure I had already written a welcome reply to your post Saturday night. Im sorry but I must not have sent it before I changed pages.

Your post tells us you have been thru alot! Its sure is NOT easy getting thru those treatments!!! When did you finish your radiation treatments?

The recovery phase can be a bit frustrating. Its full of ups and downs plus a few setbacks thrown in once in a while too. As patients we can never get well quickly enough, at least we think it takes too long to be back on our feet. During recovery at the very least until you hit your 1 year mark post rads, keep taking in higher calories and water. Daily minimums during this phase should be at least 2500 calories and 48-64 oz of water.. every single day. Check with your doc to see if adding high protein whey powder (helps boost your healing) to shakes or smoothies will be ok. Almost all of us have had issues eating post rads. It can take a while to get back on track and for most of us, after rads we eat soooo slowly especially with sore throats and mouths. Centrum now makes a liquid adult multi-vitamin. Check with your doc if thats ok too and if so you can add it right in with fruit smoothies or thru your feeding tube. Its citrus flavored which could mix with fruit juice but you may not be able to handle the acidy fruit juice if you are newly out of rads. It probably took me at least a year and half/2 years before I could tolerate any fruit juice.

Hang in there, the worst is behind you smile


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile