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| Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | I wrote you a long reply last night but my computer had some kind of glitch and I lost the whole thing. Im sorry but I cant remember exactly what I had written. All I can remember is its pretty common for patients who are getting the 3 big bag method of chemo to not get the third dose. Im sorry but I do not know how skipping the third dose will impact patients. I tend to avoid paying much attention to numbers. My odds of survival were very slim during my 3rd round of OC. With the odds stacked against me I ignored the numbers and kept telling myself I must survive no matter what numbers say. Luckily I got thru it and that was my last cancer diagnosis in 2009. The link you posted was to a Canadian study. Different countries have different guidelines with how they treat patients. Unfortunately OC is not a type of cancer much research has gone into. The big money always goes to research for the big cancers like breast, lung, skin, prostrate. Oral cancer and its treatments are not researched like those other more common types of cancer. OCF began in 2002 and has fought to fund research studies and bring awareness about oral cancer. While great strides have been made but there is still so much more to do to get OC some of the attention the other more well known cancers get. Heres a link to the NCI guidelines where you can see how OC patients in the US should be treated. NCI Guidelines ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | |
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