Platinum Member (300+ posts) Joined: Jun 2013 Posts: 346 Likes: 3 | I'll chime in with the part where you mentioned you'll be able to drive. I hate to break it to you, but after the first week or two ...no, you probably won't. You will be exhausted, you will be undernourished (if you're like I was), and you will feel like crap. Go ahead and line up a person or two that you trust and whose company you enjoy, and have them on call for the time when you end up needing them. You might get lucky ... but most of us hit a point, it's like a switch flips, and kablooey! there's no energy for anything, and certainly no brain cells for driving. This is time to focus on YOU and your healing.
I managed to avoid losing teeth at that point, but now (a few years later) I get to have all mine removed. Which means hyperbaric oxygen treatments before we can even do the surgery, and long healing after. If you need it done first, it's not bad advice to go ahead and do it.
I too got my PEG tube up front, hoping not to need it, but it was necessary. I didn't tolerate the formula well, probably should've pushed harder for alternate stuff from the home nurses for that to keep my health up, but it was better than nothing. Maybe I just should've made everyone bring me milkshakes nonstop ... at least I would've gotten the calories, even if I couldn't taste them through the tube. LOL. They are pretty simple to remove (for once the doctors actually mean what they say) so keep it as long as you need it.
There's my two cents worth. You do what you need, of course. And we're all rooting for you.
Surgery 5/31/13 Tongue lesion, right side SCC, HPV+, poorly differentiated T1N0 based on biopsy and scan Selective neck dissection 8/27/13, clear nodes 12/2/13 follow-up with concerns 12/3/13 biopsy, surgery, cancer returned 1/8/14 Port installed PEG installed Chemo and rads 2/14/14 halfway through carboplatin/taxotere and rads March '14, Tx done, port out w/ complications, PEG out in June 2017: probable trigeminal neuralgia Fall 2017: HBOT Jan 18: oral surgery
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